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To the FSHD community, we’re sharing this invitation from Drs. Statland and Tawil to join the MOVE study. It is open to individuals with FSHD of all ages residing in… Read More »
MOVE needs you!
Life hacks: Braces for shoulder stabilization
by Peter Blackburn, South Africa FSHD group I have two of the Ottobock 5055 Acro Comfort braces. These are joined at the back with velcro tape (my personal touch to… Read More »
What we started…
by June Kinoshita, FSHD Society Over the next 12 to 24 months, four clinical trials for FSH muscular dystrophy are expected to launch. All of these upcoming trials all target… Read More »
Overcoming separateness
by Haviva Ner-David, Kibbutz Hannaton, Israel WHEN I WAS diagnosed, aside from recommending swimming, the doctor told me and my mother there was an organization I could join called the… Read More »
Fulcrum’s Phase 3 trial news – what does it mean for patients?
by June Kinoshita, Director of Research and Patient Engagement Fulcrum’s announcement that it will proceed with a Phase 3 clinical trial of losmapimod is big news for the FSHD community…. Read More »