FSHD Society co-founder knew the stakes were high to get things right by Daniel Paul Perez, co-founder FSHD Society William G. “Bill” Michael passed peacefully at the age of 82… Read More »
In Memory of William G. Michael
Avidity Announces New Positive AOC 1001 Data
Avidity Biosciences, Inc. (Nasdaq: RNA), has announced new positive AOC 1001 data demonstrating improvement in multiple functional endpoints and favorable long-term safety and tolerability in people living with myotonic dystrophy… Read More »
Fall vaccine guide
Via Ranae Beeker, RN, here’s a clear and concise guide to recommended vaccines for the fall of 2023. For people with neuromuscular conditions, this is especially important because: Falling severely… Read More »
An ounce of prevention…
September is Fall Prevention Awareness Month and was the subject of our Wellness Hour. Falls are the second most common cause of injury leading to death. For a person with… Read More »
FSHD Lab Day was empowering for all
Uniting the FSHD Community in Advancing Research by Nizar Saad, PhD, Columbus, Ohio On July 8th, our lab at Nationwide Children’s Hospital (NCH) in Columbus, Ohio, in collaboration with NCH,… Read More »