“Unprecedented” and “consistent” reductions in DUX4 activity along with improvements in strength and function by June Kinoshita, FSHD Society Avidity Biosciences, Inc., a San Diego-based biopharmaceutical company, announced this Wednesday,… Read More »
Avidity shares interim data from its FORTITUDE trial
Teachable moments
How do we deal with uncertainty in a positive, productive manner? from the Women on Wellness group. Adapted from notes by Ranae Beeker, RN At our meeting in May, our… Read More »
Nerve mobility and pain
Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information… Read More »
FSHD Cycling Team to ride again
George Pollock is tackling the Triple Bypass this July Click HERE to donate to George’s ride Audacious in its ambition and breathtaking in its logical execution, Team FSHD Cycling first… Read More »
David Glass elected to the National Academy of Sciences
Co-chair of the Society’s Scientific Advisory Board receives one of highest honors in science The FSHD Society is proud to share the news that David J. Glass, MD, co-chair of… Read More »