About 12 members of the Sacramento FSH Society Support Group met at Mimi’s CafĂ© on February 8th. We had a new attendee who moved from Monterey and had never met… Read More »
Sacramento meeting report
On patient registries: findings from our suvey
Last November, the FSH Society invited its members to participate in a survey designed to gauge what members understand about patient registries and for researchers to gain insight into what kind of… Read More »
Team FSHD Cycling: Race Across America
Team FSHD Cycling, formed by George Pollock Jr., will participate in the Open Division as an 8 person team in this year’s Race Across America, one of the most respected and longest running ultra-endurance… Read More »
New Source for FSH Muscular Dystrophy Family Cell Lines
Cell Lines to be made available through the NIGMS Human Genetic Cell Repository, sponsored by the National Institute of General Medical Sciences at Coriell Institute for Medical Research (From PRWeb)… Read More »
Acceleron adds 2 new sites for ACE-083 clinical trial
Cambridge, Massachusetts-based Acceleron Pharma, Inc., is now recruiting adults with FSH muscular dystrophy for a Phase 2 clinical trial of ACE-083 at sites in Kansas City, KS, and Rochester, NY,… Read More »