By Ashley Ferreira Many patients have never heard of a physiatrist, and when they do, they ask themselves, “What do they do?” There are many different healthcare professionals that are […]
This recent FSHD University webinar titled “Breathing with FSHD” features Dr. Joshua Benditt, a pulmonary and critical care expert at the University of Washington. He provides a comprehensive overview aimed […]
In case you missed it, the long-awaited and first-of-its-kind digital research and health platform, BetterLife FSHD, launched last fall. In our video below (scroll to the bottom of the page), […]
Author: Ashley Ferreira, FSHD Society The REACH Phase 3 clinical trial, conducted by Fulcrum Therapeutics, aimed to evaluate the efficacy of losmapimod in treating facioscapulohumeral muscular dystrophy (FSHD). Despite promising […]
Author: Dr. Raymond A. Huml Rare diseases affect millions worldwide, yet treatment options remain scarce. For families like ours who live with Facioscapulohumeral muscular dystrophy (FSHD) – the journey toward […]
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