by June Kinoshita, Director of Research and Patient Engagement Making sure that every person with FSH muscular dystrophy gets the best possible medical care is a high priority for us…. Read More »
Extraordinary Measures – Updating the standard of care for FSHD
Extraordinary measures – Educating doctors
by Jamshid Arjomand, PhD, chief science officer It can take nearly a decade for the average person with FSH muscular dystrophy to get a correct diagnosis. Once they are finally… Read More »
Pregnancy and reproductive genetic counseling
One of the questions we are often asked is how will pregnancy and child-bearing affect an individual with FSHD? And because FSHD is passed on from generation to generation, what… Read More »
FSHD Masterclass for physicians is available on-demand
100% of doctors who took the live version said they would recommend this course to their colleagues. The FSHD Society’s highly rated CME-accredited masterclass on facioscapulohumeral muscular dystrophy (FSHD) is… Read More »
Busting myths about orthotics
Sponsored content from Allard USA. The FSHD Society provides this content for educational purposes and does not endorse any products or services. Always consult a healthcare professional about the use… Read More »