The immeasurable value of face to face meetings by Raj Badiani, FSHD UK I was given the opportunity to attend the FSHD Society’s International Research Congress (IRC) in Milan this… Read More »
Passion and hope at the IRC
Adventures with a robotic leg brace
Stumble control technology reduces falls by 80 percent by Kathy Senecal, New England chapter co-leader It can be difficult to find the right adaptive equipment we need to help us… Read More »
Kate Therapeutics is pursuing FSHD treatment
The company’s MyoAAV promises a less toxic way to deliver gene therapies by June Kinoshita, Senior Director of Research and Education Kate Therapeutics, Inc. (KateTx), a San Diego-based biopharma company,… Read More »
Managing Fatigue
Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »
Raising our voice to raise our seats!
Medicare will now cover elevating power wheelchair seats by Ranae Beeker, RN Margaret Mead opined: “Never doubt that a small group of thoughtful, committed individuals can change the world. In fact, it’s… Read More »