Important paper on FSHD published in Human Molecular Genetics by scientists at the BBRI NIH NICHD Sen. Paul Wellstone MDCRC for FSHD. The distinct message in the paper is that DUX4-fl expression is necessary… Read More »
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed for research study using (MRI) and magnetic resonance spectroscopy (MRS) imaging in skeletal muscle at KKI, Baltimore, Maryland. Learn more about… Read More »
The Society’s 2012 International Patient and Researcher Network Meeting held Saturday, June 30 and Sunday July 1, in Atlanta, Georgia was a resounding success. Final program HERE. Thank you to… Read More »
Volunteers within driving distance of University of California, Davis needed for research study on State-of-the-art clinical endpoints. Learn more about the study, inclusion criteria and how to get involved read… Read More »
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