Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result… Read More »
Shoulder dyskinesia in FSHD
Extraordinary Measures – Updating the standard of care for FSHD
by June Kinoshita, Director of Research and Patient Engagement Making sure that every person with FSH muscular dystrophy gets the best possible medical care is a high priority for us…. Read More »
Extraordinary measures – Educating doctors
by Jamshid Arjomand, PhD, chief science officer It can take nearly a decade for the average person with FSH muscular dystrophy to get a correct diagnosis. Once they are finally… Read More »
Pregnancy and reproductive genetic counseling
One of the questions we are often asked is how will pregnancy and child-bearing affect an individual with FSHD? And because FSHD is passed on from generation to generation, what… Read More »
FSHD Masterclass for physicians is available on-demand
100% of doctors who took the live version said they would recommend this course to their colleagues. The FSHD Society’s highly rated CME-accredited masterclass on facioscapulohumeral muscular dystrophy (FSHD) is… Read More »