By Sarah Geissler I watched as the cement beneath my feet appeared unceasingly like the perpetual roll of ocean waves. I thought about how clean it had once been, and… Read More »
You can share images and facts about FSHD over your social media channels by visiting our #CureFSHD campaign page here.
Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM Will be live streamed over the FSH Society’s YouTube channel. Bone… Read More »
By Kristin Duquette My body constantly changes and at times, I feel like there’s nothing I can do about it. Every time I lose another piece of mobility, my mind… Read More »
By Mia Archuleta, Granbury, Texas I have been thinking about people wondering exactly how the FSHDselfies have brought awareness to FSH dystrophy. Here are just a few examples of my… Read More »