Letter from Avidity Biosciences to the FSHD community: March 31st, 2025 Dear FSHD Community, Today, we are very pleased to share with you that we have completed enrollment in the… Read More »
Avidity Biosciences Completes Enrollment in Biomarker Cohort in Phase 1/2 FORTITUDE™ Trial
Springbok Analytics Leads MRI Innovations in MOVE Pediatric FSHD Clinical Study
Springbok Analytics Leads MRI Innovations in Multi-Site Pediatric FSHD Clinical Study AI-Driven Muscle Analysis to Support MOVE Peds Study, Advancing Trial Readiness for Pediatric FSHD CHARLOTTESVILLE, Va., March 17, 2025… Read More »
Press Release: FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access
FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access FOR IMMEDIATE RELEASE RANDOLPH, Mass., Feb. 26, 2025 — The FSHD Society, a leading nonprofit dedicated to advancing… Read More »
FSHD Society partnering in €21 Million project
Aiming to accelerate disease treatment and care for rare diseases See PaLaDIn Launch Press Release The FSHD Society is embarking on an exciting international collaboration to speed up the development… Read More »
Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and… Read More »