Watch what happens with this famous Dutch comedian performs before an audience of people with facioscapulohumeral muscular dystrophy. Did you notice confidence and determination of these patients and families, boldly… Read More »
A comedian’s worst nightmare
With a Sense of Urgency
When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband… Read More »
FSHD Family Day Conference in Los Angeles
The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for… Read More »
Ask the Physical Therapist series
Our blog series of Q&As with physical therapist Julie Hershberg contain so many useful tips that we thought it would be helpful to index them all in one place. Bookmark… Read More »
Bay Area FSHD Family Day Conference Videos and Slides
We are pleased to share slides and videos from our conference held in San Francisco on July 15, 2017. Thank you to our wonderful speakers and to our sponsor Acceleron… Read More »